Join #mySBHlife stories campaign

19 October 2018

There is less than one week left until World Spina Bifida and Hydrocephalus Day (#WSBHD18) and our member the International Federation for Spina Bifida and Hydrocephalus (IF) is running a successful campaign! They launched a call to collect 25 testimonies from people with SBH and their parents… and they received more than 60!


#mySBHlife stories come from people with SBH of different ages from all over the world, including young advocates from Africa who talk about discrimination, challenges and support networks and adolescents and young adults telling about taking care of their own catheterisation and breaking taboos about sexual life and relationships. There are also parents of children with SBH sharing their feelings and experiences from the time they heard the news about their child’s condition, and the different types of counselling they received.


Everyday, IF publishes various testimonies on their Facebook page, Twitter account and YouTube playlist. Check the WSBHD social media toolkit and feel free to share the stories and give your feedback!


More information can be found in the WSBHD website.


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